On Sunday June 5, at the initiative of the Groupama Foundation, the municipality of Époisses welcomed the Rétinostop association, as part of a solidarity walk to support it. The walk brought together 182 walkers.
And €8,700 was reimbursed and donated to the association in the evening, between donations from hikers, profits generated during the meal, the refreshment bar and various funds from local departmental funds, including that of Semur-en-Auxois.
Retinoblastoma, a tumor of the retina, from 0 to 5 years old
But this day also made it possible to highlight this terrible disease which affects children from 0 to 5 years old: retinoblastoma. It is a cancerous tumor of the retina. Aude Noireaut, one of the association’s correspondents in Côte-d’Or, explains that this pathology can affect one or both eyes. And that it appears during the first years of life.
Hence, according to her, the importance for parents to monitor the eyes of their children from the first months. “The symptoms are still little known. But a persistent strabismus at this age is not normal. It is recommended to carry out a simple fundus examination to rule out any doubts. It is a rare disease that affects around sixty children in France every year. But you have to tell yourself that it doesn’t just happen to others, ”she says. She adds that if this cancer is caught in time, the cure rate in children is 98%.
Few funds for research
Children affected by this disease are monitored and treated by the Curie Institute in Paris. However, to provide good care, continue research and support families, the Rétinostop association needs funding. Moreover, there are few funds for pediatric cancers. This demonstrates that it is necessary to organize initiatives such as the solidarity walk in Époisses, at the beginning of June.
Contact. Marie-Françoise Ray at 06.24.10.26.95 or retinostop.org